The waterworks saga cont’d…
My Urology appointment yesterday was brief and to the point. The first question the Dr asked me was how old was I and he commented how much ink there was on the paper; pointing out the obvious, that I have been through quite a bit for my age. Yes I have. Unfortunately. He asked me many questions about my bladder symptoms. After I answered all of his questions he explained that there is definitely something neuroligical going on. He went even further, explaining that with all of my spine problems, MS and Autonomic Dysfunction, Lupus, why wouldn’t my bladder be affected?
Ok. That makes sense. He said that he wants to run some tests to see what my urological functioning actually is. I will be going back on the 13th of May for Urodynamic Testing and also a Cystoscopy. He told me that the concern with my symptoms is whether my bladder is starting to shut down. That will mean that I will have to empty my own bladder via self-catheterization BUT with my mobility issues there is a lot to discuss basically (how can I actually do it?). The tests will give a better picture of what the underlying factors are in my bladder dysfunction. Ok. Deep breath. Pray.
My husband is noticeably upset about all of this, he does not want me to be going through this. Quite honestly I do not blame him. Who wants to think about seeing their wife like this? The Urologist also instructed me to see the Neurosurgeon or an Orthopaedic Dr asap to have an MRI on my spine. He very strongly urged me to get to one right away. Could he tell that I have been avoiding it?
Having to see the Rheumatologist this Thursday, the Ortho Dr on May 8th, and this Urological testing done on May13th…my hunny & I are frustrated. We just do not have the time, gas money or energy to make all of these appointments. In the month of May, my daughter also has a dental appointment (expect a post on that issue), my middle child sees the Sleep Specialist on May 25th and my oldest has to go back to a Neurologist because his migraines are flaring up again.
I need HELP! An extra driver, a maid, a secret bank account, an extra day in the month, hour in the day, a nap. Can you guess what I am going to do today to get through the stress? It does not involve liquor. I am going to bake bread, muffins and fresh applesauce with my little girl. It is my therapy and special time with my Lilli.
Life does go on from here…
Filed under: feelings, health, lupus, multiple sclerosis, photography | Tagged: ms, Urine retention, urology, cystoscopy, urodynamic testing










You and Lilli have a wonderful coping skill in your hands. Thank you for sharing! I wish I could be there for the fresh bread
You have more than your share of issues demanding attention on your plate. Here’s to healing and smooth appointments and $$ in the bank to pay for them. I wish you energy and Blessings.
I too am facing the waterworks saga. It’s good to know that I’m not alone, but I wouldn’t wish this on anyone!
Shawna